Saturday, December 31, 2011

Out of the mouths of babes

About 2 weeks ago my dear friend Christina shared with us some wonderful news. This year for Christmas she was able to placed on the UNOS list for a lung transplant. This has been a long time coming for her so I was thrilled. We have been praying for this for her for a while now. At the time my children were in the car with me while I was on the phone with her congratulating her on this awesome news. I told her I could not wait to help her raise money and do fund raisers with her. A short time later the conversation ended.
A while later driving down the road both of my girls proceeded to ask about Christina's situation. The kids had spent time over at her house this summer on the 4th of July and really enjoyed spending time with her and her kids. They also can not stop talking the goodies she made (wait well all talk about all the goodies she makes!) but then they also asked about her lungs. They had over heard the conversation and are curious on how she has been doing. My kids are compassionate like that. They like to keep up to date on how friends and family are doing that are sick and ill. I explained the situation of what she has been through and how we are so excited that now she is on a list to get new lungs.
After a short time of explaining the situation Ella's voice from the back seat asks.. " mommy how does she get her new lungs?"  Ugh thinking to myself I was hoping they wouldn't ask because I really didn't want to have to tell them that someone has to die in order for her to keep living. I took a deep breath and as I was about to respond she decided to try and answer her own question. And this is why I love children's logic. The logic the kids come up with for how situations should happen and play out are just to cute but sometimes some of the best ideas.
Ella had in just this short time to come up with that there must be a giant store where all sorts of, in her words, "body parts" are kept. And that anytime someone gets really sick they just go to the store or send their doctor to the store to help them find the new parts they need. So since Mrs. Christina needs new lungs she can send the doctors to the store and find her the perfect set. Ahhhh if it was only so easy. Wouldn't it be nice if you needed a new heart, lung or kidney to just stop off at the store while picking up a gallon of milk and grab the organ that you needed?
Hannah agreed this had to be the way it worked because well how else would one get a new organ. Both girls got quiet and I could feel their eyes on me as the car got sort of quiet. They wanted a response a justification to the scenario they had given me. I took that deep breath again and said that while I think its a great idea we had a special store to have these things for people who are very sick and need them its just not how it works. I explained how much goes into the process of finding someone the new organ(s) that they need. I explained the testing, and how afterwards in order to keep that new organ healthy the person has to take meds to keep it working properly and take really good care of themselves. I was hoping this answer would suffice because I just didn't know if talking about the entire process would be to much for them to handle. I mean they are after all kids and we as parents want to keep them sheltered and protected from the bad things in life. Not that a transplant is bad but they way my dear friend will have to get one is just sad. Someone has to a lose a life for hers to continue on.
A moment of silence went past and Ella spoke up again. She said "well if there is no store mommy how does Mrs. Christina get her lungs?" I took a second and gather just exactly how to reply. I just went for it. I reminded them of how Uncle Alex died and how sometimes people get sick and don't wake up etc. The girls understood that so I decided to just go for it. I figured worse case we get Mrs. Christina on the phone and she can do some answering! I told them that some people when they die want to have all their viable organs donated to those who need them. I looked in my rear view mirror and saw some mighty big eyes along with some perplexed faces. I told them that even though they are dead they can really help so many people who really need them. I asked them both "honestly what will you need with your organs when you are no longer living?" They both said nothing since we don't do anything when we are dead.
The girls actually did much better with the explanation than I thought. Phew I was off the hook on this one. As we pulled into the parking lot at the shopping center Ella looks over to the strip mall looks over at me and says " I really like the idea of a store better."  I told her I loved the idea of that but until modern medicine can create organs out of thin air this is how it has to work. She seemed content with that answer. Thank goodness but honestly I love hearing things out of the mouths of babes.
I would just like to add though for those interested in following my friend Christina Kupers story I have attached her FB page to here. There will be a few fundraisers to help her cover the cost of these wonderful new gifts she will be recieving. For those who would like more information please feel free to contact her or myself!
https://www.facebook.com/groups/177754992274148/#!/pages/Funds-for-Lungs/311168732250959

Monday, December 12, 2011

Perspective

It has been a while but given the last few days I thought maybe it was time to do some writing. Its crazy to think the holidays are here. Where did this year go to? Have you ever noticed the older you get the faster time seems to fly? I swear It was just the new year like a week ago. So much happened this year and while I might have the most wonderful memory a lot of things still remain fresh in my mind like it happened yesterday.
We have been blessed with many opportunities this year and it seems as a door has closed for us another one has opened. While it is sad that Chris is no longer active duty he has found a job he is content with, the motivation and dedication to get his schooling out of the way to pursue the job he loves, and a once a week he gets to be able to do his passion and I might add he works with a great group of men who really seem to be like a family. So much actually I might actually consider becoming part of that family. By that no I do not mean being one of those crazy guys and running into a burning building but more of a support member to help back events they want to do and do misc tasks that need to be done. After their open house this weekend I have to say they are great appreciative group of guys. Potosi VFD you guys are amazing thank you for making us feel so welcome!
Today we took H to get his new ears. They did tubes again and a Adenoiectomy. While we all know how routine these procedures can be I the very worrisome over protective momma. Everything started out very routine but still I was left with a nagging feeling. 30 minutes later our doctor came out and said everything went well. I took a deep breath but still there was that feeling. Why would I still have that since he said it went well. Lots of time passed as we awaited them to bring us lil H. I knew something was up when the lady who's daughter went in after us had her daughter in her arms. Shortly after they came out to speak to us. Once they attempted to take the intubation tube out he stopped breathing. His tongue rolled to the back of his mouth and that was it. They proceeded to put meds in his IV to help get things going but they also had to bag him and give him a breathing treatment. I was a wreck so was Chris. This brought back the days of the NICU full force. After a few hours his vitals where normal and we got the go to leave. I have been over him like a hawk all day and he has been pretty good. He sounds gunky and raspy but we will see the pedi in the morning so we will see what she says.
Going through this just made me think of how far we have come. A year ago we sat in a NICU with nurses and doctors who made sure his lungs where strong, he could fend for himself and do a simple task of taking a bottle. Then we battled RSV it was a scare that really made us wonder how well those little lungs actually worked. Of course the icing on the cake was our hospital stay with pneumonia in January. See this is where I get my worry wartness from! But as always he pulls through. I think he likes to make us sweat every once in a while. I now have to go get my hair done often to cover the greys this kid is giving me!
The last few weeks people who have come into my life have found a way out sadly. I hate losing friends but I also have to keep my standards because I am not going to be treated like dog poo and walked all over. I have also discovered my new found ability to speak my mind and really let people know how I feel. Jordan says I should download a filter for this but I think if I keep it in some sort of boundaries I should be ok.  Its cost me a few friends but at the same time maybe they were not really friends to begin with but just meer acquaintances that came into my life to keep me in check. That I can be thankful for.
This is going to be a great yet emotional week because its that time to drive to Dallas and go see my babies! I am surprising them by coming down a day early to show up for holiday parties. I get to spend the evening with my older sister Dana and her twin boys and that is exciting because I do not get to see her enough.
Well I wanted to write more but H is in charge right now and well he is a bit cranky and demanding so I think I will wrap this up and tend to him. That anesthesia has worn off and he is just a peach right now. Pray for a calm quiet sleep full night!

Monday, November 14, 2011

Careful what you wish for

A year ago possibly even longer than that I found myself giddy over the thought of Chris no longer being active duty and thrilled at the possibility we could actually become a normal family. No more TDY's, deployments, crazy hours, remote tours none of it! The thought was exciting and blissful.  Of course at the time I was still residing in Dallas and Chris in Abilene so of course anything sounded better than our current situation. A month later I would make a choice that would shake up our family dynamic and cause a bit of a stir.
At the end of January I picked up and decided to try living with my husband. At the time we knew with his MEB it would only be for a few months and we would be back in Dallas. The kids would stay with their dads and H and I would start a new home in Abilene. I figured 6 months 9 a the most we would be here and by the start of the school year even possibly Christmas we would be back and starting back at my old routine.  Around May word came down of Chris' final out date. It was then that everything started to hit me. But remember this is what I wanted I longed for the day where the government wouldn't run his life but that he could actually be in control of things.
August came and the final day of active duty hit us both like a rock. It was the first time being with Chris that I questioned if this was what we where really ready for. It was also the first time I questioned if we where going to make it. I am not proud of admitting it but until you go through this the stress that it puts on a family and a marriage is unbelievable. While I know it was hard for Chris losing this life he had lead for 14 years, the safety of a routine and structure, the "family", just the over all military life was slamming closed and not the way he envisioned it.
Now I know I have overheard, over read and even met with ladies who say emphatically how ready they are to be done with the military. There of course was a point and time where I would chime in and agree and feel that exact way. I felt that way until that day when I realized at midnight Chris would no longer put that uniform on, he wouldn't work those crazy shifts, he wouldn't go into that shop, he wouldn't leave his family for weeks or months at a time doing a job that he had grown to love so much and do so well. I felt deflated and lost. I hated seeing my husband so lost and left out of what was once his life. I felt bad because for months it was all I pushed for an wanted. I felt that in same way this was my fault that I wished so hard that it for once came true! I just remember one day looking up at the sky and shouting "Really!, after all the damn things I ever wished for and wanted this is the damn thing you listen to and follow through with! This sucks and I wish I could take it back!" Of course that wish was never granted. Go figure right?
Lately now I read about my friends who long for the day of not being military and dealing with the headaches, I read of their spouses who say I hate this job and I wish I was done. I think to myself "Man I would gladly trade you places right now, right this very second I will change places with you!" But I just calmly say " Be careful what you wish for because someday when you least expect it that wish is going to be granted and maybe you might not feel that same way when that day comes down and this life is over."
I will be honest I feel left out now. I will never get to experience another departure or homecoming of my husband, I won't get to attend family squadron functions, I will never get to attend a Air Force ball or an enlisted dining out. I know sounds pretty stupid but you know what it was things I had looked forward to and had anticipated in this military life. I will never get to experience a PCS to a great new location and have the opportunity to make up a whole new military family. But I know I will always have my Dyess family here no matter where they go. Thinking about that makes me sad though, as we stay here I know, because I am no dummy, a time will come when all these wonderful people I have come to know and love and consider my family will move on to a new location. To me that is not something I look forward to. I am so used to moving around now this whole staying put thing is not all that I thought it would be. Instead of me being the one saying good bye I am now the one people are saying good bye to. I push the thought out of my head and tell myself " Remember Dyess is the base no one leaves! Your friends aren't going anywhere this is the black hole once you come in you never go out!" Its not true but maybe if I wish for it hard enough like I did with Chris getting out of the AF maybe this one will come true also.
I know hind sight is 20/20 but man if I know then what I know now I would never made such wishes and I would be thankful for all that I have and the great opportunities Chris and I had.  I wish I could go back and change things, I wish I could take back saying the things I did. I guess maybe I need to not do so much wishing and maybe just embrace what my reality is and know that there is a plan for us, I might not know right now what it is but someone has a plan for us and sooner or later that plan will become clear and I will embrace it and only wish good things for this plan. Then again even the best laid plans have their downfalls but even those downfalls have a silver lining so I will find it embrace it and know that life happens and its not my choice to alter it.
I think since August this is the first time I have been open about how I feel about all this. It feels nice to sort of get these emotions and feelings off my chest. I think being around all these fresh out of Basic Training kids this weekend in San Antonio triggered some thoughts and emotions I had brushed off.  It was probably a good thing I saw those kids those kids this weekend because maybe it was time to get this out in the open and off my chest. I know it wasn't easy for Chris to see them and be around them. I know it brought back 14 years of memories. I am sure he wanted to grab each one of them and shake them and tell them make the most of it, enjoy it and take advantage of what is out there because one day in the blink of an eye it will be gone. 
I think maybe from now on Chris and I will be more cautious of what we wish for. I think this taught us a lesson to appreciate and value what we have. No need to rush things just to take them as they come. Life is to short and who are we to not enjoy what life has given us. At least I learned from this as I am sure Chris did and know that life can change in the blink of an eye so just be careful what you wish for.

Wednesday, November 9, 2011

Breathe in

Just when things come rolling through here like a crazy freight train and seem out of control they suddenly get super calm and peaceful. I need peaceful I need tranquil and I need to just breathe. Last week became a stressful hard week for me and for my family. But the troopers that we are we just worked and over came our struggles and are pressing forward now.
I have not heard anything back on the job interview. I can safely assume that I am sure I did not get the job. There was only 4 spots open and since it was on base military spouses take preference. I am not a military spouse of course now but I am hoping my sparkling personality and my wonderful qualifications helped but I guess we will see. I think not hearing anything about this job is what has me down. I am going to hit the ground running next week to look for a great teaching job maybe a weekend away will clear my head.
In the meantime I am going to keep busy by doing more in the community. Some wonderful ladies have banded together to create a group to help those in the military community. I know I just said I am not military anymore but still they are my family and a lot of these people mean a lot to me. I want to do my part and feel that I am helping and making a difference so this is a great opportunity for me. I am also still doing what I can to help the Westbrook family. I was fortunate enough to get to hang out with them last night and had a wonderful dinner with them. I will be meeting with a friend next week to hopefully launch so new ideas to continue to help them in their time of need.
So baby for sale or free to good home! H has decided that he wants to rule this roost! I get so frustrated at times with him but then I think I just need to be thankful that he is able to do the things that he is doing. But still it's hard when you just want a clean house and all you see is the mess that lil terror has left behind you! Today he decided standing on a couch throwing every item from his diaper bag would be a fun activity. Oh and by every item I mean every single baby wipe in the pouch also! I guess that wasn't enough so clearing off the computer table and dumping grape soda was an added bonus! Oy Vey! How is a momma suppose to get homework and house work done?!  I am just kidding though I could never part ways with that baby boy! He might make me mad but he makes my day.
I guess the holidays are now quickly upon us. That is when I really just need to breathe and not stress. Easier said than done. I am excited though this year. We  are opening up our home to friends in the area who have no where to go and don't want to be alone. I am hoping that we have a great turn out but even if its not many its still the fun of sharing the holiday with those you care about. I only wish the kids could be here but I get them for Christmas so its ok. I know they will have a great holiday with their dads so its all good.
Well the demanding cries from H are getting louder so it is time to wrap this up make him dinner clean him up and get him ready for his sitter. Hopefully he he more of a peach for her than he has been for me!

Thursday, November 3, 2011

Sticks and Stones.......

....Will break my bones but words can never hurt me.  Growing up that is what our parents and teachers told us. But honestly we know no matter what words still have the power to hurt us. Sometimes it is done accidentally and we truly feel bad for saying something that would cause hurt and pain to someone else. Then there are those who go out of their way to say things to hurt them to make them feel sadness and pain because their own life is filled with such sadness and hate. A friend of mine posted something on facebook this morning on bullies and how a teacher in New York taught them in a visual sense how being a bully can hurt others. She told the children to crumple up and stomp upon their piece of notebook paper. Then once they had finished they where to open up that same paper and try to smooth it out. The children looked at the crumpled up dirty paper and the teacher says when you bully someone this is what they feel like. While you opened it up and tried to smooth it out the wrinkles, the scars the hurt is all still there and wont ever go away no matter how hard you try to fix that paper.
A situation arose last night and it made me feel like that child's crumpled up paper. I felt torn down, stepped on and has left lasting scars on my heart. I know I can't please everyone and I know for sure I can't make ever one agree with what I do but it is my life and as long as I am doing what is in the best interests of my family and myself than it is not up to anyone else to say what I am doing is wrong. I know everyone has their own thoughts and opinions and I respect that. In fact what a boring world we would live in if we all felt the same and agreed upon all the same things. I am always up for a good debate but in the end if it is a matter that involves me and my family it will be resolved by just that myself and my family.
I was crushed last night, I felt defeated and despaired. It didn't however take long before I have my friends and family rally around me to make me realize that they love and support me in what I have had to do and until someone walks a mile heck even a feet in my shoes they have no room to make judgement upon my life. I am so grateful to have those people in my life and am proud to say I have a wonderful support system. I know now who has my back and it makes me happy to know that my family and I are loved and cared for by so many.
I guess today I will buy stock in thank you cards and make sure I send every one of you one to say thank you for all that you have done for me. I always make it a point to say in person how thankful I am for those who have stepped up to help me and done something in return to show my appreciation for things done for me, given to me etc. I guess maybe handwritten sentiments is more fitting. I just have rarely ever done them and figured email, phone call, personal message face to face would be sufficient enough. Well I am not perfect nor have I ever claimed to be so yet we have found another one of my flaws and imperfections and I guess I need to change that. So to everyone who wants a handwritten note of my thanks please forward me your address so I may get those out in a timely manner.
Today is a new day and I am going to embrace it as a new start. I can't erase yesterday but I can move on, move forward and make a new start to overcome things that have hurt and upset me. So today I will spend time with those who mean the most. I wish that my 3 oldest where here to have a family day but we will have plenty of those in the weeks to come just like we had plenty of it over the weekend. But today is all about making a new start over some bumpy road.

Wednesday, November 2, 2011

This crazy wonderful life.

Wow almost a year since I posted last! I guess life got the best of me and well kept me from this page. I guess we have some catching up to do don't we?! I guess we should just start off were we left off.
I finally found some friends out here. I thought that would never come. But I have sadly had a few close ones come and then go and as hard as it was it was all for the best. People come into your life for a reason and the often leave to for that same reason. But I have my great now every growing circle of friends and I love that they are each so different and bring so much to the table. It makes being here super tolerable heck even enjoyable now.
I have had 2 jobs since being here. Both in the field that I love but just not what I was expecting. Neither were a good match for me so now I am just staying at home hoping to find the right job and work on my schooling. H is still going to his school he does so well and enjoys it so much that it makes sense to keep him there.
Speaking of lil H he is doing fantastic! H just turned 1 and hitting his milestone now and its just impressive! He is saying a few words, walking, climbing, self feeding, learning baby signs, and just doing most things little ones his age do. Health wise he is doing alright. We had a bought of sickness that we couldn't shake for about 3 weeks but we seem good now. His RAD ( not sure if you guys new we had an official diagnosis of the lungs but its Reactive Airway Disease) is under control with steroids and his nebulizer. We just need to keep him healthy through the winter months because according to his pedi it will be hard on his lungs if he gets sick this winter. Lovely!
I am enjoying the quiet, country life of Abilene. Chris has been medically separated from the military now for a few months. Its been a hard adjustment for all of us but we are making do. He has found a job at the BX in Firearms. Go figure right?! He is doing volunteer firefighting out in Potosi and has met a great group of guys out there. We have even made friends with a few of them. They are a great family and I think that's why he likes it so much out there. He is going to school ok well he was going to school. He will be getting his butt back into gear next semester and work on what ever it is he decides to get his degree in. He changes his mind like he changes his underwear! He denies it but I swear he does really. I miss the kids so much but I know how well they are doing back in Dallas. I am seeing them often lately which helps me not miss them to much but its still so hard.
I guess I have grown up a lot since being out here. I have really learned to take a lot at myself and see what kind of person I really am. What sort of wife, mother and friend I am. I have learned so much about how I can be better person and friend. I also have grown more as a wife and mother. Sometimes leaving home is for the best and really puts what you have in perspective. I find myself always on the go now and keeping myself busy with friends, schoolwork, housework and of course my family. I have learned the more definite meaning of what being a friend is and how to become a better one. I have seen that we all have our strengths that we bring to the friendship and its up to us as a person to utilize that to make these bonds grow stronger and bigger. I am glad I have an assortment of friends with all sorts of interests, talents and likes. It makes being around them so much more enjoyable and fun. I have learned so much in just the 10 months I have been out here so much more I think then all my years of being back home.
I guess that is about it for now. I have been using FB more to update and load up pictures and such. I think though I will get back in the habit of using this though. It's such a better outlet and it helps when it comes to status updates ha ha. Well that is all for now. Maybe if something interesting happens between now and tomorrow I can write again! But for now I say good bye!

Wednesday, February 9, 2011

Here I am

Here I am 10 days post transplant to Abilene. I guess last weeks shouldn't really count since it was almost like a vacation due to the insane winter weather. Chris didn't have to work so we just hung out at home since the roads were nasty and the drivers out there had lost their minds! The move went rather uneventful. Saturday the weather was perfect for moving, but what would a Saturday be if Hunter didn't have to go see the doctor?! He has more fluid behind his ears but at that time we opted not to treat him since we had just come off antibiotics so we would see if it was just teething, the onset of a new ear infection or something else.
We arrived around 7pm with the help of Chris' friend Randell. Honestly having him there to help not only helped Chris but it helped me. He proved to be a good distraction in keeping us entertained and being patient when I would fall to pieces. I fell to pieces several times over the course of the day. I met his wife Tabby and their darling Trinity who is about 6 weeks old that night and we had some pizza. Our awesome neighbor Lindsay came over and provided us with a BBQ chicken snack until we got our dinner. She also was a huge help unloading the truck. It is so great to have great people around. It will make this transition easier.
Saturday morning I was a basket case. I cried anytime I walked into the kids room or started to think about leaving. Hannah gave me the most amazing hug and snuggled me for a good 20 minutes crying and telling me how much she loves me and how much she would miss me. But she did look at me with the most scared sincere look and ask if I would be coming back. Oh it just broke my heart into a million pieces. I never want my kids to think I am ditching them. Ella was upset but it didn't seem to hit her till I dropped her off at Jason's house. I could hear her crying as I left the house. I lost it and fell to pieces. With Sean there wasn't as much emotion. We are used to our short times together so when we said good bye it was not a big deal because I knew I would see him next weekend and plus he has a cell phone he loves to text me and make random prank calls!
We started out the week with what I thought would be my new routine. Chris working overnight, home asleep during the day and home for dinner. The winter weather changed that and we were snowed in from Monday night until we left for Dallas bright and early Saturday morning. We did leave twice once for a doctor apt for Chris and then a trip to the ER for Hunter since we knew his ears were still bothering him. Both times I just prayed to get from point A to point B with no incident. I did so much baking and cooking to during that time that I am sure Chris will be in a gym for weeks working it off! We also had our wonderful neighbor over for dinner along with Randell, Tabby and baby T. I have never enjoyed entertained guests as much as I have now.
Saturday morning bright and early ok well it wasn't bright but it sure was early we made our drive to Dallas. Surprisingly the roads were fine but the highways were littered with the remains of what you could tell was a serious winter storm! Hunter's check up was uneventful due to the office being short staffed. We learned that yes this is his 4th ear infection and since he is only 5 months old we can't do surgery. If after 6th moths of age he is still having problems we will revisit surgery. We have made it very clear we are on board and want it done. Maybe being at home with me for the remains of Cold, Flu and RSV season will help.
The kids and I were so glad to be reunited together for the day. We ran lots of errands and saw my best friend Lauren and her husband and daughter. They had a nice gift of tons of diapers and a super cute monkey for Hunter. I loved every second I had with them this weekend and was sad to drop them off. Chris said in about 3 weeks we will come back out. Then of course we have them for spring break!!
So life out here is not so bad and I am adjusting better than I thought. I had fears at first of finding my niche and fitting in. I know sounding so Jr. High I know. My goal is to just take every opportunity to go out and meet new people and grow to know Chris' friends/coworkers. I am fortunate enough to have great neighbors so I know I will be fine. Plus starting school soon should help.
I almost forgot to share the good news about Chris and his knee. We had his doctor's apt on Tuesday and we were told to start a new physical therapy with these electrodes that will help redevelop the thigh muscles. Redeveloping that muscle will help keep his knee in place therefore helping with his major troubles he has had. So for now we are down but not out which is great news. He did file his MEB (evaluated by a board to see if he can be medially discharged) but we have some time to see if this helps and he has been told he could possibly retrain to another position. While this prolongs our stay out here it is my job as his wife and supporter to support him and be there to help push him. We will make it back to Dallas soon enough. But I can't be selfish it's not fair. He needs this and honestly we need this. So while we thought we might be home in May we won't it might be 18 months from now which still isn't bad if you look at it. And I am ok with that.
Well that has to be it for the news around the Thomas house. Both my boys are snoozing away so I will take this time to clean the house and prepare for our guests tonight. Now that I am home more I will be sure to update more too! Have a great week and be sure to stay warm!!