Friday, June 28, 2013

Counting my blessings and being thankful for life.

10 days ago I wrote a post about failing. Several told me I didn't fail that we just hit tough times and that it would all get better. I still feel like I failed but it did start to get better. Why do I feel like I failed? I feel like I failed because honestly I shouldn't have to count on others to help my family when we reach a point that there could be no return. However I am so thankful for these people. Some were great friends and others complete strangers that came to our aide in our biggest time of need.
How did the help you might ask? A complete and total angel went to take care of the remainder of our rent that was past due. Anther angel gave us money to help us get ahead on the next months rent. A great friend helped us cover the cost of the girls to go to the youth center so that they could come spend the summer out here with us and let us be a family. Three amazing friends filled our house with essentials and groceries and with the excess I have I am paying it forward to help a very special family who is also in need right now. And last but not least those who made donations of money, diapers and wipes. We are so excited about how many diapers we have at this point because we all know H is not going to be wearing underwear anytime soon.
For those things I am counting my blessings. I know that there are still wonderful people in this world who really know how to step it up in time of need. To those who are wondering how we are able to get things like Tennis and a birthday party and a few other extras right now, no we are not squandering away the money we are using what the money was given to us for and making things happen for our family. The tennis is for H and its for kids on the spectrum. This will help with turn taking, hand eye coordination, following directions and peer/social interactions. Its a small group setting but still its a starting place. We can't leave H out in the cold with no way to celebrate his birthday so we have been given help to make sure he has a party. Thank goodness for cheap venues and great people. He will be doing gymnastics for this years party so we are super excited about that.
Last week was and even part of this week has been very trying for not only just myself but for the family. We got devastating news Wednesday afternoon about a coworker/friend. While we all hoped and prayed for the best it just sadly wasn't meant to be. She left this earth early Saturday morning after they established there was no brain activity and nothing more they could do for her. She left behind three beautiful children and several children she has fostered over the years. It was truly hear breaking to hear and still hard to comprehend.
Michelle was a huge advocate and supporter for our family since last year. She gave me many avenues and resources to help myself and my son while we endured this crazy adventure we embarked on. I usually would spend time in her office twice a week if not more discussing progress, antics, frustrations and accomplishments. I would listen to hers. She was a single mom dealing with two children under the age of 5 with their own set of special needs plus a teenage son. She was a saint! We often joked our kids were two peas in a pod. H would learn from her youngest daughter. I would always ask for the answers before H even attempted the things her daughter would do. I cherish that bond we had as not only her being my supervisor and coworker but my mentor and friend. She was suppose to join us at our ARD meeting the 17th of July. I know she will be there in spirit guiding these fine folks who will evaluate H in making the right choice for him and our family.
The other huge loss we suffered this week was the horse H has been riding since November. There have been countless pictures and posts about H and his horse Slurpee. The big, giant, 21 yr old 16 hand tall horse that H loved more than anything. Last week Slurpee fell ill with what we thought was colic. We spent a few hours by his side at the stables all the meanwhile H was laying right there over him rubbing his belly kissing him and telling him he would make him all better. It broke our hearts to hear it but made my heart swell with pride to see him show such compassion when he has really never done that before.  The following morning he was taken to the vet. Saturday evening we thought he was taking a turn for the better. Sunday the vet said if he saw no progress by morning he would have no choice but to put him down. We all prayed, we prayed and begged for a miracle. How could we suffer another blow this week?! Sadly around 10am Monday Slurpee crossed the rainbow bridge. I felt so angry and let down. We still hadn't told him about Michelle and now we have to explain to him Slurpee.
Monday after tennis we took a trip over to TLC and started the process of explaining how Slurpee would not be here anymore and he would have to ride another horse. At first he insisted upon his horse we left with him agreeing to ride Tiny. I was good with that since it was the only horse that had the complete opposite features and coloring of Slurpee. However that plan backfired when I realized he was used by another child. We rode Sheeza the horse that could have passed for Slurpee's twin. While at first we thought this was great it ended up confusing him and now he things Slurpee is back and that death is not actually final because well in his mind Sheeza is Slurpee. Sigh.
They say bad things happen in three and I am sure hoping those are our three. I know we are never given more than we can handle but I feel in this case it was way more than we could handle, however we overcame it all. We are picking up the pieces moving on, making new paths, taking on new challenges. It is time to put our focus on the things we have coming up. Our biggest is the meeting on the 17th. Our other big focus is the girls and enjoying and making the most of the time I have with them here.
We are so blessed right now we are so grateful for the life we have. It could be worse and we could have ended up in a much more different situation but we didn't. We were given the chance to take this as a learning experience and make sure we make the most of what we are given. We might not ever get that second chance again.

Tuesday, June 18, 2013

I failed

The last 5 days have been a grueling hell for our family. I hate writing about financial stuff but truly right now this is the burden that has overruled our family and caused so many things to come to a screeching halt for us. If ever there was a time to feel that the world was out to get us and the deck was most certainly stacked against us its right now. We haven't shared too much simply because we don't want pity and those to feel sorry for us. I figured I would share the story after we had gotten our news so that way it wouldn't seem like everything was centered around this event.

I guess for it all to make sense giving the backstory of what is going on might be in order. Its stupid and complicated so I am going to give it up in a short summary so that we can move on. Two years ago Chris medically separated from the military. We were left with a nice chunk of change but we got stupid, well sort of. We bought a much needed second car, took a few too many trips I guess back and forth to Dallas, I stayed home, I bought myself some clothes, you get the point. Fast forward a year and its weeks before Christmas. Chris' ex wife suddenly decides to reveal her whereabouts over the last year and now wants Chris to pay up. Mind you we tried but the previous state she had lived in sent it back saying return to sender, she does not live here, her case is closed. Leaving no forwarding info or contact information we assumed she took off and wanted to sever ties. WRONG. Chris suddenly owed over a years worth of child support. To sum it up no tax returns and about 70% of his wages are now garnished until well the state allows him to dispute it which is 3 years. Hop forward to this spring and the VA decides to throw some big roadblocks in our path and now suddenly our housing money is being cut off. They want US to pay THEM back 1082.00!

Throw in all of H's expenses and it really is enough to make one's head spin. I mean the stack of medical bills are 99% his. We joke about him being the million dollar baby but man if you total up his expenses from birth in the NICU until right now I wouldn't doubt it. I have not had the pleasure of a special needs child until just recently so I now see how all these families go into debt etc from this life.

So you see everyone wants to test the theory of squeezing blood from a turnip. Of course that means robbing Peter to pay Paul but after robbing Peter so many times it burned us. Twisting our budget a million ways still had left us short, too short for comfort. However up until this point we were ok. We might have paid rent a bit late but we managed to get our bills paid before services got disconnected. However the whole robbing Peter to pay Paul has come back to haunt us now. We put off some debt we thought we could ignore and now it's hit us again and took a toll on Chris' paycheck. Simply put teenagers working fast food joints and those who wait tables literally make more than Chris does each paycheck.

In a sheer state of panic last Wednesday I realized that our housing money might not be coming back for a while and started to fill out their form to explain the reasons why we could not pay them back the money they say we owe them. That night it hit us we are really about to lose it all. Chris grabbed a box and proceeded to pack a few draws of our china hutch. My heart sank. I submitted my resume to local preschools back in Dallas. I have to find a way to prepare myself if this is how it must go.

The following morning I began my quest of trying to get us out of this hole. I stuck a deal with our electric stating I could pay 50.00 on Friday and the rest the next week. Praying that we would have some sort of help by the 20th. I went to the leasing office and explained the story taking documentation to prove I wasn't a low life slacker who wanted something for nothing. I also divulged that we have gone without eating to conserve food so that the kids could have it when they are here and that H has something to eat each night. I wasn't lying. Chris and I had not eaten dinner in nights. I ate at work because the meals are free since I eat with the kids in my room. Otherwise I just drank a lot of water or lemonade to keep my feeling "full"

Thursday evening I got a burst of hope that maybe just maybe things would work out. The leasing office pooled their money together and bought us some groceries even dog food. It wasn't much be still enough to make a huge difference. A friend dropped off toiletries and cleaning supplies things that we needed. Two friends made a donation on H's fundraiser page. I suddenly had hope for humanity. I had hope for us.

Monday I managed with a sick kid and all to round up every financial detail needed to head over to the Salvation Army. I was told the lady was out and to come back today. I was down but not out. I took the last 450.00 out of our account and gave it to the apt in good faith that we would find a way to get them the rest. I was losing time and resources fast. Every church I called was out of money or could not help us in the way we needed it. It was suddenly like a nail biting baseball game. Bottom of the 9th bases loaded 2 outs and you have one more chance to make or break this situation. Game was called however on the account of rain only to resume the following morning. It was enough time for me to just try and come up with one last plan.

Here it is Tuesday and for some reason I thought this was our day. I had worked so hard to get everything we needed, collect info and make the calls necessary for us to keep doing what we needed to do. I prayed like I have never prayed before, I prayed that this game was not going to be over. It couldn't I had worked so hard to get us this far how on earth could we lose it all. We always have come out on top so why should this time be any different. They just want to see us sweat thats all. Right?

With a giant folder in hand I grabbed my cranky child's hand and walked through the doors of the Salvation Army. 7 people were ahead of us and I prayed again this would go quick. This was not an outing I wanted to take my Autistic child on but with him having a fever I had no choice. After an hour of waiting our names were called. I had no idea in 30 seconds this game was going to come to an end. For those of you cheering for the underdog, thank you. However bottom of the 9th bases loaded 2 outs and a tied score we lost. It was like the grand slam of losing. Salvation Army was unable to help us because we pay more than the fair market share for our place.

My heart was heavy, my stomach in knots as I drove to the office to tell them of our news. Our landlords like I have said have been amazing through this. I hated to have to tell them that this was it. I walked in and apologized over and over. I failed. I let them down. I let myself down and worst of all I let my family down.

I don't fail. I hate to fail. I was a failure as a child never doing well in school, never doing well as a daughter and sister. I thought I was making up for it now in adulthood but I sadly was not. I had to utter the words I hated the most "I failed, I am sorry".

You might be asking "What now?" I don't know and I will be honest. It is in the hands of my landlord. It is in the hands of God. What is to become of this family is no longer mine to figure out. The only glimmer of hope I hold at the moment as that we MIGHT have qualified for food stamps and MIGHT qualify for medical insurance. I won't get my hopes up but that lady on the phone was an angel! She gave me information to help Chris and to help us maybe at least keep our electric going. She has become our saviour for now.

 I just pray that her next phone call before this day is over is something of good news however I am living by the motto "Prepare for the worst and hope for the best." Sounds sort of negative and corny but honestly I feel if I am more prepared for failure and let downs it makes the best outcomes even more enjoyable. So please say a quick prayer for us as we hope that we hear some sort of good news before this day is over.

Sunday, June 16, 2013

Father's Day



Well another Father's Day has come and gone. Our day was not some big planned out event in fact it was far from it. We reorganized our our living room and H's play area. H has struggled the last few days with his behaviors and I think this is mostly in part to his Asthma and Eczema flaring up to the point it is making him crazy. That and his eye issue has just sent him over the edge. 


I spent some time looking through pictures today and wanted to make something special for Chris. I found some of my favorite pictures of Chris and H together. Right now the two of them are sitting on the couch across from me looking at pictures. Chris is showing him pictures of his NICU days and as a baby. H seems very into this which is awesome. Just a few months ago this was a pipe dream for us. He had no idea the concept of pictures and that he could actually be in a picture and be right there in person. It was a concept he couldn't grasp. Suddenly after so much work he gets it. 

Just last night he did something we had not ever heard him do. He sang an entire song, well with some help and skipping around, but still he SANG to US!  We laughed and we cried. Looking at Chris' face it made it me see a side that I had not seen in awhile  It was a face that said " I am such a proud father I don't care about anything else right now!" It's true we were both so proud because all that heartache and hard work is really paying off.  He will never cease to amaze us!


Sorry the video is huge but I want everyone to see just why we are so excited. Please excuse his attempts to strip towards the end. He was getting a bit excited and when that happens well his clothes seem to come off. 

So I will leave you with some pictures I found of some great father child bonding moments. There are so many more but these are the ones that I just feel do him justice as a daddy. 

 Dove season. I guess it's never to early to get em hooked
 Teaching the kids the finer points on taking care of Shadow
 Working with daddy at the fire department
H, daddy and B at the dog park
Daddy and H getting ready for the rodeo

Thursday, June 13, 2013

I said UNCLE!!!

I can clearly remember as a kid playing that game where you did what you could to hurt the other to the point they would scream out UNCLE! You would stop what you were doing laugh and move on. The marks would fade quickly after and the whole ordeal was a distant memory.

How I so wish this was the case as an adult. I wish I could just scream UNCLE! and all my worries and troubles would just vanish. I tried that tonight and the stack of bills are still on my table, the hate mail from the VA is still here next to me and the harassing calls are still coming strong.

I never like to talk about our situation because its such a stupid and well I am not even sure how we got here. Ok well I do but I can't still wrap my head around this. All I know is now we sit here and cross our fingers each day that when we wake up we will have gas and electric and when we get home there isn't a nasty gram from the front office asking once again where our rent is. Good question we would love to know where our money is. We would love to know why the VA finds it ok to take almost 2 years at this point to help compensate my husband for the years of service he provided. 14 years to be exact. How about the housing assistance we should be getting while Chris is in school? How do they get away with this stuff? How about the lovely ex and the state of Tenn that finds it ok to garnish 75% of my husband paycheck every two weeks? I promise when I get these answers I will let those who want our money have what they need. 

I have never begged or asked for money, I lowered the head the first time many years ago I got on assistance from the state. I threw caution to the wind last year to apply for SSI for H and got denied. We did get approved for $11.00 a month in food stamps ( total sarcastic tone here!) The only time I really asked for money was for our Walk team for H and that money didn't go to us it went to the organization. However I just recently set up a donation page out of desperation to see if anyone at all would help us. Here is the link if you do so feel inclined to help us. http://www.gofundme.com/HopeforH

I have done the paperwork for HHS to get food stamps and medicaid  I am hoping to get SSI for H this go round again I doubt it. I also plan on selling non essential organs and limbs that i find no use for to help off set our cost. Ok that last part was a joke but man when you get desperate you get desperate. You know it's bad when you don't have the 25.00 you need to get your son's birth certificate for his preschool registration. I am serious when I say that.

Everyone talks about hitting that rock bottom and know that you will just move on from there. You know that it can't get much worse. I am hoping we can call this our rock bottom and we can finally feel the end of this violent storm that has ripped through our family leaving us desperate and confused. It's like sitting out a nasty tornado that comes ripping through praying that if you must sustain any damage that its superficial and easy to fix, only to walk out after the storm and know that its just a total loss. 

Now it is time for our family to walk out pick up what pieces we have left gather up our strength and courage and push forward. Take it day by day. We can at least say that we have each other and those who are close to us. Only time will tell where we end up but for now we are just going to take it as it comes. 


Tuesday, June 11, 2013

IEP, IFSP, ARD, ECI and all the other things in between

So some pretty crazy information has been passed my way over the course of the last few weeks. My son only has 12, well now 11 more ECI sessions left. Before everyone starts passing around the congrats and celebrating its not because he has graduated and made enough progress to leave the program, its due to the fact that in 11 weeks he will be 3!  After 3 years of age the child in ECI graduates to the school district. To those of you who do not have special needs children or have never had to deal with ECI do not even ask why 3 is the magic number and not 5 when they are school age. This is how the program goes and I assume that because they have preschool/pre-k special ed (PPCD) that is why. 

For the last 6 months I have worked my behind off to learn all the ins and outs of what was to come for us. Of course I thought 6 months was plenty of time. After all most of my college courses only last 3.5 months and I have done fine so an extra 2.5 months to prepare and study up should make me golden right? I have never been more anxious and worried in all my life. Even my toughest course, Abuse and neglect, was easier to get through than this. I made a reference today that this has all been like taking the college course and on July 17th is my final exam, the moment I will make or break this for my child. 

You might be asking why am I assuming this all comes down on me when after all its going to be H they are evaluating and testing. Well it's because I am his mom and his advocate. If I am not going to fight for his services who is? If I don't prepare myself, get the information, gather those to speak on his behalf who will? I have been going to every meeting I can make, talking to others who have been down this road and read up on my own what to expect. Maybe this is more like childbirth than preparing for the big exam. Regardless I am anxious. 

I have done a 504 with Hannah and it was nothing. However it was easy given we all knew ahead of time her severe learning differences/ disabilities so her teachers knew exactly what she needed to succeed. No one at AISD knows who Hunter is or what he has been going through so I will relay on every evaluation, assessment, exam  and person who has interacted with him to help us in our plea to get H the education he deserves.

Over the last year ECI has been one of the best things that has happened to us. Our coordinator and our therapist have been amazing. They have found us resources that have helped us far beyond what we ever could have found ourselves and been a shoulder to lean on when we have felt down and out. I know in 11 weeks while I will be so excited my baby is 3 I will be so sad to have lost such a wonderful service that has helped us so very much. 

Today I have compiled a list of who I would like to attend our meeting next month, what information I will need and letters from those who I would like to speak on our behalf on why we need these services. My work is cut out for me seeing as I have a meeting with HHS to get state assistance for us and submitting my paperwork for SSI again. I am sure we will be denied but hey you never know until you try. We even set up a fundraising page to help us alleviate the costs we are incurring because of the therapies and appointments. So far no luck but it was a long shot anyways not that we were honestly counting on it. A friend suggested it so we went with it. 

I guess it is back to work. H has his iPad and eaten his cereal and eggs for dinner. I can use this time that he is distracted to get things done I need. I am still sitting here staring at him and wondering how did we go from IFSP's to IEP's! Apparently time keeps on moving even when you are busy trying to keep it still! 

Sunday, June 9, 2013

Our summer fun

Ok so our summers are different around here. I work full time and so does dad.  We don't take vacations its not an option sadly for our family. But here is what we got so far...
 Brothers swimming
Morning home therapy
Frozen Yogurt
fabulous summer attire
A little one on one
Our beloved nap time
Therapuetic riding on the sensory trail
Feeding the most awesome horse after therapy.

Saturday, June 8, 2013

10 Things I am thankful for

Found another blog hop this morning and this one was talking about being thankful. I like to take the time to say thanks and know what I am thankful for so I jumped on the hopping wagon and gave this one a shot!


  1. I am thankful for the normal cliche but I will say it anyways because I truly am. I am thankful for my family. I am thankful for the immediate and extended family. They are all very special to me and without them I would be nothing.
  2. My job. Times are tough and while there are days I would like to throw my hands up and quit I know that I am lucky to have the job that I do have. There are plenty of people around here who are struggling to find a decent job. 
  3. The team of doctors and specialist that we have for our man H. Between West Texas Rehab, ECI, Cook's Ft. Worth and his pedi in Abilene we wouldn't be making the progress and seeing all the wonderful things we see. 
  4. My dogs Schatzie and B. Without them I would be cleaning the floor more often when H decides he doesn't like what's for dinner.
  5. My dear friend Dani. We decide to go to Dallas for a few days and she comes over and cleans and remodels the house. Not many people can say that about their friends so we are lucky to have her. 
  6. My friends. The ones who have been by my side through thick and thin even when I have vanished for months, been out of touch and been an idiot they are still right there and we never miss a beat!
  7. vanilla ice cream and coke. I could live off of Coke floats and I just might if the heat keeps up the way it has this summer.
  8. For modern technology! I swear I would not know what to do with myself if it wasn't for the internet, FB, blogging and email. These are the things that get me through that help me when I am in need of finding the answers, getting away and just needing to lose myself!
  9. NAP TIME! Both in my preschool classroom and at home. This is my time to relax, reset and realize what I need to accomplish and what I have done so far. Like right now this is naptime and H is on the couch passed out. God bless naptime! 
  10. I am cheating but I need to give one more shout out to the family. So yes one more time I am thankful for my family. My husband, my kids and my siblings. I love them all and really am so thankful for them!